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Simon Sykes
I
was diagnosed with type 1 diabetes in 1982 at the age of 5. Through my
childhood and teenage years I did not really encounter any difficulties
with my diabetes. I started work in 1998 working for a small oil
distributor carrying out a variety of tasks, both physical and mental.
I moved to a new job as a water treatment engineer in June 2003 shortly
after my partner had our baby.
Following this happy event I started a new job in Jan 2004 working for another oil company. This company was taken over in July 2004 and I was relocated to another site. I was made redundant from this job in March 2005 after taking sick leave.
Problems started with my health in Jan 2005 when I was taken into hospital suffering from pneumonia. During this period doctors found out my kidney function was slightly impaired. Despite this fact in June 2005 I started a new job as a window tinter for a windscreen company.
In July I attended my first renal appointment at Hope hospital, where it was noticed that my kidney function was rapidly decreasing. I was then given another appointment for 3 months. Around the same time I started to notice that my eye sight was beginning to deteriorate, and after hospital appointment it was decided that I would need laser treatment. This treatment was started in August 2005. My first dose of laser treatment went ok. I did notice a slight improvement in my vision. I was told that I would need some further treatment and was given another appointment for September 2005.
In July 2005 I became aware that my body had started to swell up. I started to find it difficult to move about alot without becoming tired.
In September I went for another dose of laser treatment. After this my vision became very blurry, and as a result I had to give up my job. In October I was admitted into Hope hospital as I was heavily overloaded with fluid due to my deteriorating kidney function. I was given a course of frusamide to try and get rid of some of the excess fluid.This treatment helped to remove some of the fluid, but I was told that I would need some type of dialysis in the near future. I decided that I would go with the option of peritenial dialysis as this could be carried out at home which would be easier due to my poor eye sight.
I started on dialysis in early December 2005. At this point it was decided that I would be placed on the transplant list for a combined kidney and pancreas transplant. In Aug 2007 I was called up for a transplant but it was decided that the donor pancreas was not suitable for transplantation. I was then called up again in Jan 2008, but at the time I was suffering from a chest infection and so was not able to be considered for a transplant.
My life has been completely changed since I became unwell, as it meant that I had to give up working. Also many of my hobbies and interests have been affected. I used to enjoy driving and vehicle maintenance but cannot any longer do this. I also used to do a lot of DIY but this also I cannot do. It has also become difficult to get around as easy as if I try to walk any distance I become tired quickly. It has also proved to be difficult to help to bring up my son.
Editor comment:
Page links
Challenging Transplant Issues
Solid Organ Donation
What solid organs can be donated?
Human Tissue Donation
What human tissue can be donated?
How to become a Donor
a. Blood donation
b. Bone Marrow donation
c. Cord blood donation
d. Tissue and Organ donation
e. Sperm and Embryo donation
f. Whole body donation
g. Brain donation
Donor Experiences
1. Denise Darvall - first heart donor
2. Leroy Hobden -kidney
3. Matthew Ferguson - multiple organs
4. Living kidney donor Maggie
5.The Herrick twins - kidney
6.Charlotte Pestell - eggs
7.Mark Jackson - sperm
8.Barbara Ryder- kidney
9.Charlotte Newall - blood donor
10.Laura Ashworth - multiple organs
11.Daniel Harrison - tissue donor
12.Adam Rogers - multiple organ donor
Heart recipient stories
1. Louis Washkansky - first heart recipient
2. Graham Brushett - heart & kidney
3.Dave Garry - heart
4.Chet Szuber – received his daughter’s heart
5.Bill Noble - heart
Lung recipient stories
1. Justine Laymond - double lung
2. Elaine Betts - double lung
3.Gill Hollis - single lung
4.Sean Bell - double lung
Kidney recipient stories
1. The Herrick twins - kidney
2. Holly Shaw - kidney
3.Jonah Lomu - kidney
4.Ivan Klasnic - kidney
5.Andy Loudon - kidney
6.Rachel Leake – kidney recipient
7.Soul singer Natalie Cole – received a kidney from a deceased fan
Liver recipient stories
1. Ivo Dawnay - liver
2.Brian Clough - liver
3.Clare Bond - liver
4.Vikki Medlicott - liver
5.Apple Boss - Steve Jobs - liver
Other recipient stories
1. Alex Patrick - eggs
2.Beth Morris - blood and bone marrow
3.Susanne Butscher - ovary
4.Claudio Castille - trachea
5.The Newall family
Waiting and hoping
1. Simon Sykes
2. Rachael Wakefield
And time ran out
1. Helen Miller
2. Adrian Sudbury
3. Lewis Prior
The Organ Donation Taskforce - ODT
1. The Organ Donation Taskforce - ODT
2. Recommendations of the ODT
Presumed Consent debate
1. Why change opt-in?
2. Why is legal and medical consent so important?
3. Opt-out or Opt-in?
4. Alternative consent systems
a. Routine Salvaging
b. Priority consent
c. Preferred consent
d. Conditional consent
e. A Social Contract
f. Mandated Consent